• Useful links
  • Information
  • UK National Organisations
  • European & International Organisations
  • Help for young people, families & carers
  • Include your organisation

Useful links

Information

• WHO International Classification of Functioning, Disability and Health

• NSF - National Service Frameworks - National service frameworks (NSFs) are long term strategies for improving specific areas of care

• NICE – National Institute of Clinical Excellence - an independent organisation responsible for providing national guidance on promoting good health and preventing and treating ill health

• Archives of Diseases in Childhood - online edition from BMJ Publishing Group

• British Paediatric Computer and Information Group - established to advance knowledge of and use of information and computing in paediatric and child health practice
  
  CaF Directory - conditions and syndromes which affect children

• National Electronic Library for Health - digital library for NHS staff, patients and the public

• Mac Keith Press - the leading source of paediatric information publishing on child neurodisability and developmental medicine

• Pediatric Database - Dr. Alan Gandy (US)

• Virtual Library - medicine index (US)

• Google - pediatrics index and search page (US)

UK National Organisations

• British Association for Community Child Health - a membership organisation that represents doctors and other professionals working in paediatrics and child health in the community

• British Paediatric Neurology Association - promotes improved care for children with neurological disorders

• Centre for Evidence Based Child Health - Institute for Child health, Great Ormond Street Hospital

• Children Living with Inherited Metabolic Diseases -  umbrella organisation working on behalf of children, young people and families affected by metabolic diseases

• Children's Health - in association with Action for Sick Children

• National Autistic Society - information about autism and Asperger syndrome, the NAS and its services and activities

• National Children's Bureau - works to identify and promote the well-being and interests of all children and young people across every aspect of their lives

• National Deaf Children's Society - strives to remove barriers to deaf children in the hearing world

• National Centre for Young People with Epilepsy - UK's leading provider of education, treatment and care for children and young people with severe epilepsy and other neurological disorders

• Royal College of Paediatrics and Child Health - main objects of the College are to advance the art and science of paediatrics, improves standards of medical care to children, and to educate and examine doctors in paediatrics 

• STEPS - nationwide charity providing specially adapted battery operated toys to severely disabled children

European & International Organisations

• European Academy of Childhood Disability - an academic association of professionals working with children with disability throughout Europe

• International Child Health Group - a Speciality Group of the Royal College of Paediatrics and Child Health (RCPCH), with membership open to everyone with a professional interest in advancing child health internationally.

• CanChild: Canadian Centre for Childhood Disability Research - research addressing children and youth with disabilities and their families

• International League Against Epilepsy - the world’s preeminent association of physicians and other health professionals working towards a world where no persons' life is limited by Epilepsy

Help for young people, families & carers

• ACT - working to improve care and services for all children in the UK with life-threatening or terminal conditions and their families

• After 16 - what's new? - choices and challenges for young disabled people

• Birth Defects Foundation - information and support

• Child Bereavement Trust - founded to improve the support offered by professionals to grieving families

• Connexions - information and advice designed for 13-19 year olds in England

• Contact a Family - national charity providing support and advice to parents whatever the medical condition of their child

• Direct Payments - find out about local disability services and information

• Family Fund Trust - purpose is to ease the stress on families in the UK who care for severely disabled children under 16, by providing grants and information related to the care of the child

Include your organisation

If your organisation would like to be mentioned on these pages, please contact Kelly Robinson (bacd@rcpch.ac.uk).