Guidelines

Government:

BACD Guidelines:

Practical Symptom Management in Pandemic Flu This guidance is intended for use in situations where health services are overwhelmed and larger numbers of children require symptom management and end of life care than can fully be supported by the usual resources. The guidance forms part of overarching guidance on capacity planning for the management of children with palliative care needs and those receiving end of life care in the event of an influenza pandemic. Click here to download.

Organisation:

Code of Practice on the Disability Equality Duty

Getting it right when treating people with a learning disability A good practice guide

Including Me: Managing complex health needs in schools and early years settings Download (free of charge) the handbook

Managing Medicines in Schools and Early Years Settings DfES 2005

Medical Conditions at School: A Policy Resource Pack compliments the DfES guidance

National Autism Plan for Children

Removing Barriers to Achievement

SEN Code of Practice

Standards for Child Development Services A guide for commissioners and providers.

Transition: moving on well A good practice guide for health professionals and their partners on transition planning for young people with complex health needs or a disability.

Other:

Caring for a Child with a Degenerative Disorder A Parent’s Perspective A Summary of the Skills, Knowledge and Understanding needed to look after a Child with a Genetic, Degenerative Disorder