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Papers and guidelines

Transition: moving on well

A good practice guide for health professionals and their partners
on transition planning for young people with complex health
needs or a disability
DH Partnerships for Children, Families and Maternity/ CNO Directorate

(February 2008)

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Caring for a Child with a Degenerative Disorder A Parent’s Perspective

A Summary of the Skills, Knowledge and Understanding needed to look after a Child with a Genetic, Degenerative Disorder
David and Sally Wray

See also: Andrew: a journey – a parent’s perspective. D. Wray and S. Wray. Child: care, health and development. Blackwell Publishing.
(May 2004 / Volume 30 / Number 3.)