This promises to be a useful and engaging session looking at a thorny issue from different perspectives – from service users, researchers, and practitioners from both children’s and adult services.

Learning outcomes:

  • Learning and understanding on the new prevalence data on young people with life-limiting conditions and what this means for professionals, services and commissioners.
  • Take away learning about different models and approaches to improving transitions for young people.
  • Understanding and insight into the Project ECHO approach to improve care by gathering a community of practice together for learning and support.


  • Lizzie Chambers, Director of Programmes, Together for Short Lives.
  • Carrie James, ECHO Transitions Partnership Manager, Hospice UK.
  • Hannah Hodgson, Young Expert.
  • Prof Lorna Fraser, Professor of Epidemiology and Director of the Martin House Research Centre, University of York.
  • Tracy Jones, Head of Community Services and Partnerships at Ty Hafan.
  • Jayne Grant, Project ECHO Lead, CHAS.
  • Fiona Wylie, Senior Nurse for Strategy Implementation, Prince & Princess of Wales Hospice.

Free Registration

British Academy of Childhood Disability is registered in England and Wales under charity number 1177868
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