This conference will take place via Zoom

Programme

What is genuine coproduction and why is it needed for children with medical complexity?  
Dr Mary Salama, Consultant Paediatrician and Medical lead for Children with Medical Complexities (CMiC), Birmingham Women’s and Children’s NHS Foundation Trust and Gill Phillips, Creator of Whose Shoes?®

Coproduction in designing care

  • Who are we trying to improve services for? Identifying children and young people - Gabriella Walker
  • Coproduction at a personal level - The trials and successes of Co-designing a care package for a young person - Mansoor Akhtar 
  • Coproduction at a national level - NHSE Strategic Coproduction Group and involving people with Lived Experience in shaping the direction of national work that affects people with complex medical needs - Colin Royle, NHSE Personalised Care Manager (Lived Experience) Central Team Strategy and Innovation Directorate

Reflections on the Emergence of Pediatric Complex Care
Eyal Cohen, MD, MSc, FRCPC, Complex Care Program, The Hospital for Sick Children; Professor of Pediatrics and Health Policy, Management & Evaluation, University of Toront

Panel discussion - The challenges and barriers in co-production

Experts by experience - educating professionals/parents 

  • Bridging the Gap: Training for parents and professionals in Effective Communication and Coproduction - Rachel Wright
  • Parent and team perspective - Tara Kerr-Elliott, WellChild Nurse Specialist / Practice Educator Louis Dundas Centre, Great Ormond Street Hospital
  • Perinatal/neonatal perspective and provision of virtual training - Alex Mancini, Pan London Lead Nurse for Neonatal Palliative Care

Involving ‘experts by experience’ in the research process in children's palliative care. What’s it like and why is it important? 
Dr Jo Taylor, Lecturer in Applied Health Research, Public Involvement Lead for the Martin House Research Centre

Register here

Audience:

  • Healthcare professionals working children and young people with medical complexity and their families 
  • Researchers
  • Commissioners and professionals working at a strategic level
  • Families of children with medical complexity

Learning objectives:

  • Gain professionals’ perspectives and experiences on strategies to working with families 
  • Gain opportunity to network with professionals and parents/carers caring for this patient population
  • Gain parents’/carers’ perspectives and experiences on caring and advocating for medically complex children and young people
  • Gain insight on how different partners can work together for the benefit of these children and families
British Academy of Childhood Disability is registered in England and Wales under charity number 1177868
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