The 2020 annual scientific meeting will take place on Friday 13 March in Sheffield, and focus on sensory impairment.
Registration is now open - please scroll down to the online booking system. The deadline for early bird rates is Friday 28 February.
We are aware that some bookings are unable to be completed due to NHS trust IT systems blocking the final payment process - if you are unable to book online email [email protected] for alternative payment options.
|08.45||Registration, Refreshments & Exhibition|
|09.15||Welcome - Dr Catherine Tuffrey, BACD Academic Convenor|
|09.20||VINCYP - supporting visually impaired children from identification to post-school transition|
Dr Margot Campbell, Associate Specialist in Community Child Health, NHS Tayside & Lead Clinician, Visual Impairment Network for Children and Young People
This talk will demonstrate how a national care pathway, standards and guidance have been developed, supported by information and a teaching and training programme, to produce improvement in services. Children in Scotland are no longer registered blind or partially sighted. They are instead notified to the VINCYP clinical audit system. Initial data from this process will be presented.
|10.00||Living with dual sensory impairment - family perspective|
Theresa Peacock, parent and co-founder Norrie Disease Foundation
This lecture will cover the challenges facing Ethan, who has Norrie Disease, now and in the future, and how this affects the family as a whole. Ethan is severely sight impaired and has begun to experience the hearing loss associated with Norrie Disease. His mum, Theresa, will share her personal experiences of parenting a child with sensory loss, reflecting on the lessons she has learned over the last 15 years, and her hopes for the future. The talk will also include perspectives from other members of the Norrie community and discuss what professionals can do to help children and young people with sensory loss, and their families.
|10.40||Coffee Break, Posters & Exhibition|
|11.20||Polani Award 2018 Presentation: Modern illness or a thing of the past? Surveillance study of childhood/ adolescent Syndenham's chorea in the UK and the Republic of Ireland |
Dr Tamsin Newlove-Delgado, Senior Clinical Lecturer in Public Health, University of Exeter
Sydenham’s chorea (SC) is a neuropsychiatric condition associated with prior streptococcal infection, which largely affects children and young people. Although considered ‘rare’, little is known about the current pattern of this illness in the UK and the Republic of Ireland. Our research, conducted through the British Paediatric Surveillance Unit, is the first prospective surveillance study to take place. Working closely with the family charity the Sydenham’s Chorea Association, our aim is to raise awareness and inform service planning. With more cases reported than expected so far, in this lecture we will present the initial findings from the first year of the surveillance and discuss the implications and next steps.
|11.35||BACD Strategic Research Group Update
Prof Jeremy Parr, Chair SRG
Providing an update on research activities and opportunities within childhood disability in the UK and announcing the winner of the Polani Award 2020
|11.55||Paul Polani Lecture: Vision impairment as a complex neurodisability:
advancing research and practice for assessment and intervention
Dr Naomi Dale, Consultant Clinical Psychologist, Great Ormond St Hospital & Associate Professor in Paediatric Neurodisability, UCL Institute of Child Health
Visual impairment has multiple impacts on neurodevelopment from infancy through childhood. As more is learned about the neuroscience of visual impairment, research and practice must draw together to optimise identification of complex neurodisability needs and effective intervention. Key areas of development are reliable validated assessment and intervention methods that can successfully meet the needs of children with visual impairment in the coming decade. Drawing on a sustained clinical research programme, research areas will be explored and their relevance to practice. These include: 1) identifying risk and vulnerability to developmental trajectories; 2) screening, assessment and diagnostics, with particular focus on autism spectrum disorder; and 3) evaluation of effective early intervention in the context of childhood visual impairment. Initiatives towards evidence-based clinical guidelines for assessment, diagnostics and classification of cerebral visual impairment are discussed.
|12.45||Lunch, Poster, Exhibition & BACD AGM|
|14.00||Providing eye care to children with disability: where are we now and where do we want to get to?|
Lisa Donaldson, Head of Eye Care, See Ability; Rachel Pilling, Consultant Ophthalmologist, Bradford Teaching Hospitals NHS Foundation Trust
Over the past ten years Rachel and Lisa have uncovered the gap in underdiagnosis and lack of ongoing service provision for children with developmental delay and sight problems. They will present the findings from the world’s largest in-school study, the work of the NHS England Special School Eye Care Programme and its upcoming service launch. They will do some mythbusting around sight tests, share some key principles in understanding how children with special needs ‘see’ the world, and explain simple ways the ‘team around the child’ can support special needs children with visual problems.
|14.40||National Deaf CAMHS: A specialist commissioned CAMHS service for Deaf Children and the assessment of Challenging Behaviour in Deaf Children |
Dr Reenee Barton, Consultant Child and Adolescent Psychiatrist (hearing); Kerry Allen, Deputy Service Director/Head of CAMHS Children, Young People and Families Services Somerset Partnership NHS Foundation Trust
The National Deaf CAMHS service is an NHS England fully commissioned service for the community and inpatients since 2009 that provides a highly specialised mental health service for severely/ profoundly deaf children and for hearing children of deaf adults (CODAs). This presentation outlines a brief history of service development in the context of unmet need, as strategic overview of how the regional services work together, and some of the achievements and challenges to service delivery in the modern NHS. We shall also include an overview of the specialist assessments and interventions we offer for children with challenging behaviour with deafness and often additional sensory, learning and neurodevelopmental co-morbidities and advice on how to refer.
|15.45||Social-emotional functioning of deaf children and young people: bridging theory and practice |
Dr Emmanouela Terlektsi, Lecturer in Deaf Education, University of Birmingham
Deaf and hard-of-hearing adolescents experience more peer problems and lower levels of friendships than their hearing peers. The presentation will mainly focus on the results of a qualitative study which aimed to identify the experiences of 30 adolescents, 13–19 year-old with a moderate to profound hearing loss, drawn from a population-based cohort study in which their receptive language and social–emotional skills had been assessed. Participants reported that, overall, they had developed positive and rewarding relationships with their peers, notwithstanding their earlier experience of being bullied. Conflicts and infrequency of interaction in their friendships were mainly reported by girls. Adolescents with moderate hearing loss were identified as facing the same or even more barriers than adolescents with severe to profound hearing loss in making new friends. Interventions to support the social and emotional development of deaf children identified by a systematic literature review will be discussed.
|16.30||Summing up, Mac Keith Poster Prize presentation|
Gala Dinner A 3 course dinner (£45 per head) will be held on the evening of Thursday 12 March at the Crown Plaza Hotel, Sheffield. BACD invites members, friends, and delegates to attend the Gala Dinner to celebrate BACD becoming a charity and achievements in childhood disability through the inaugural Achievement Awards.
Venue Crown Plaza Royal Victoria Sheffield, Victoria Station Road, Sheffield S4 7YE.
(Please note that this is a revised venue, as the original hotel has ceased trading).
Directions BACD asks delegates to consider using public transport where possible. Sheffield train station is a 10-15 minute walk (0.8 mile) and has good rail links across the UK.
For delegates driving, there is good access to the M1. Please be aware that whilst there is parking available close to the venue, there is limited onsite parking.
The BACD annual scientific meeting is supported by
We are aware that some bookings are unable to be completed due to NHS trust IT systems giving an error message and blocking the final payment process - if you are unable to book online email [email protected] for alternative payment options.