This event is an opportunity to understand cerebral palsy as a lifelong condition, including the consequences of aging and the associated co-morbidities. It will consider the challenges faced by the 130,000 community of adults with CP, the lack of coordinated care, and how this impacts them achieving full-life participation. It will also explore innovative solutions for a better future, using insights from professionals and patients living and working with the condition.
“You become 18 and then [all support] stops. But your Cerebral Palsy doesn’t disappear when you’re 18, but the services seem to stop. ”Barriers for adults with Cerebral Palsy on achieving full life participation: access to healthcare services and progressing at work, a report of the All-Party Parliamentary Group on Cerebral Palsy, March 2022
During this meeting you will:
- Be informed of the latest research regarding adults with cerebral palsy and co-morbidities, ageing well with a disability, and the patient experience
- Gain insight into specialist centre innovations in the UK and the international landscape
- Learn the NICE guidelines and parliamentary recommendations around the APPG on cerebral palsy
- Discuss what optimum health care and support could and should look like for this community
This is a unique chance to connect and engage with the adult cerebral palsy community. Delegates will have the opportunity to hear some personal and professional experiences of living and working with cerebral palsy, and understand how best to manage this condition. Topics include the consequences of aging and associated co-morbidities, innovative solutions, APPG report recommendations, and more.