The British Paediatric Neurology Association (BPNA) and James Lind Alliance have just launched a Priority Setting Partnership (PSP) survey to help define the Top 10 unanswered questions about the treatment of Childhood Neurological Conditions. For more information about the Priority Setting Partnership please visit the BPNA website which sets out the objectives and who is involved in the Steering Group.
The first stage of the PSP is to ask patients, carers, and clinicians, via an online survey, for questions about childhood neurological conditions where there is uncertainty about the effectiveness of treatments.
Following the end of the survey, an interim prioritisation exercise then takes place, before a priority-setting workshop is convened where participants, representing patients and clinicians, debate and finally arrive at a Top 10 list of research priorities.
The eventual aim is to turn these priorities into funded research questions that have the potential to go on to improve the lives of children with these conditions.
Complete the survey now
If you have any questions about the PSP, please do let us know by contacting the PSP Administrator Philip Levine